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My thoughts on autism research

THE ROAD NOT TAKEN  

        How autism "shaked" my world  Since the autism adventure have started, I have this mystic fealing about being involved in it for resons beyond normal profane existence. Why me ,why my kid where questions I decided from the beginning I will never  ask myself. The scientists were not able to find a common explanation ,so there is no reason to reflect too much on different causals ,because there is nobody to confirm I could be right..         I never trust my logic as i trust my instinct .I look at my child , I look inside myself ,I look around in my autism large earth familly ,than to the neurotipycal people I know and I get this unexplaned feeling that I was chosen for this mission and i am in the select company of other chosen ones. It is a mistery like from a secret  Knights Templer or Masonic Order.. It is not secret because it would have been kept faraway of the common knowledge by the will of a reduce number of initiated poeple .         It is hard tangible because  another dimension and way of perceive life was opened in twlight for us and invited us to meet it just behind an imaginative border line  our minds had drawn it .        The knowledge was given by force in the beginning but with every day that passed we have absorbed the information and became the translator for our children ,their earth guardian angels too, some angels with brown orange wings hampered with the anger-frustration-pride links that  keep us close to the ground.        Life forced us to look deeper inside ourselves and around us with eyes wide opened  .We are more awake we used to be before the diagnosis and from this point we become responsible for what we choose to do with this knowledge.              We are part from a bigger plan whether we choose whether someone else has chosen for us and in this point the sacred meets the profane. Isn’t it life fascinating ?    

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Glitch.com

I've come to a point that the only future thinking I want to worry about it making sure Racer has money when he gets older. I don't want to worry about him in that way, regardless of where he's at or what he's doing I want to make sure money is not a problem. I used to always worry about  Racer future, would he go to college, would he still be living with me and his dad? But I've realized that it could be any of my kids that face those same issues but Racers autism makes him uniquely special in that respect.So today at the award show the VP asked the kids what they wanted to be when they grew up. Now all the kids hands shot up and after a small delay Racer brought his hand up. Most kids answered the usual cop, or doctor, teacher or vet. And I've never posed this question to Racer, there is always so much other stuff we are dealing with to worry about it. When he got to him, Racer just froze, I kind of had that gut check feeling knowing this isn't something that we have ever dealt with. I looked over to his teacher who smiled at me and then walked over to Racer and whispered something to him. When the VP came back around his teacher motioned over to Racer and was asked again what he wanted to be, over the mic.... (giggles frm other parents) Racer says "uhhhh"  (giggles frm other parents)Teacher: Remember what you just told me?Racer: (mumbles) CopNow I suppose I would be thankful to the teacher for getting him to say something, but who's benefit was it for? I know Racer has never been prepped like that, to expect him to even think about that right now seems silly. He lives in the literal world and future stuff doesn't matter to him. I really didn't need her putting on a show for my benefit....and after I write this I'm not going to think on it any further.When Racer got home and had his millionth snack and finished his homework, he was sitting in my lap playing puzzles on my phone. I asked him what he wanted to be when he got bigger, and he whispered Fireman, when I asked him why he said "because they save the day". I hugged his lil stone body and smiled to myself, because that was all I needed to hear.

John LeSieur's Blog

Hope Technology School-Inclusive Education, Innovative Technology http://inclusion.hopetechschool.org/ This blog is a collection of articles written by the staff at Hope Technology School, a fully inclusive preschool -8th grade program in Palo Alto, CA. Serving students from around the Bay Area Hope Tech also supports a Vocational Education Program, Assistive Technology Lab and onsite Therapy Department (SLP, OT, PT). Categories covered: Assistive Technology In the Classroom Inclusion at Hope Technology School Social Learning Transition to Adulthood